This week I also joined Dysautonomia International's Awareness Army. People in the Awareness Army volunteer their time to help set up fundraising events and raise awareness. There goal is to "make Dysautonomia a household name." I sent in my volunteer application, but I am still waiting for someone from th organization to email me about what I can do to help. Hopefully they will get back to me soon.
Another thing I have been doing, is looking into buying wristbands that say Dysautonomia on them to sell to raise money for dysautonomia research. I did some research on the Mayo Clinic website and they have a way to choose what part of the clinic you want the money to go. I will be doing further research into these wristbands this week.